It’s been a month and I have had very little pain relief from cutting fake sugars and soda from my diet. However, I know it’s good for me and I’m done with it forever. I was put on a few different medicines, one of which is called Trokendi XR (Topiramate). I took 3 doses, increasing the milligrams each week for three weeks. Unfortunately, my short-term memory loss from this medicine was significant. It was very upsetting. Not only was there no help with the pain, but I was losing it and making mistakes I never would normally at work.
So my neurologist took me off of that and I’m trying something different. She also gave me a shot in the back of my neck to cause a little numbness and as she said, to “break the pain cycle”. It’s been 10 months straight of a headache, even when I lay down, which is horrible enough but explaining it to people is worse.
I think it is very easy to have compassion and empathy for a person with a chronic condition in the beginning, even in small doses as time goes on, but you begin to feel like the little girl (or boy) who cried wolf. People lose their concern for your health and start to focus more on how much a pain it is for them, or how depressing it is to always hear about a person not feeling well.
But my family and friends have been good to me and I can count on them. I just realize if I’m exhausted from the pain, they must be tired of not having the “normal me” around. I am sure tired of it too. So the shot took the edge off a tiny bit and I felt a little bit better for the first time in a long time. I even had the energy to go and help my daughter clean this past weekend. That was nice.
Hopefully, my neurologist and I can figure this out and get me back to full speed soon. I really think a chiropractor/acupuncture route might be best going forward. I am going to discuss those options with her. Love, HauteAngel